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Ninety eight per cent of neonatal deaths occur in the clinical, and often impersonal, environment of a hospital setting, with very few parents currently being supported to allow their baby to die at home or at a children's hospice. Some of these babies, especially those for whom there is no hope of cure, and those who are close to their end of life, could be transferred to their family's home or a local children's hospice, with appropriate support. Palliative care is generally only provided for babies over 28 days old, and this new pathway aims to change this norm.

This invaluable family companion is designed especially for parents and family members of children and young people that have been diagnosed with life-limiting or life threatening conditions. At a time when things can seem overwhelming, this companion acts as a step by step guide through the complex and often confusing processes that take place following diagnosis. With interactive elements to help parents think important things through, as well as comprehensive lists of unfamiliar glossary terms and useful organisations, this companion explains what should happen, why it should happen as well as making it clear what support should be made available, and where that support can be found.

A Guide to the development of children's palliative care services is a key resource for all organisations and professionals who have an interest in developing or supporting services for life-limited or life-threatening children and their families. It sets out ACT's vision for the future sustainable development of children's palliative care, ensuring that the best quality care and support is available to all the children, young people and families that need it.

The children's palliative care workforce is the primary building block for developing reliable, responsive and sustainable services to enable the delivery of care and support that children and families need, delivered where, and when they need it. Right People, Right Place, Right Time, jointly published by Children's Hospices UK and ACT, has been developed to provide a tool to enable this by drawing together the processes required to support and encourage service and education providers and commissioners to plan and work together, and to support networks as they plan to develop an effective and responsive children's palliative care workforce.

The Transition Care Pathway provides an easy to use, clear framework to help young people, families and professionals adjust to, prepare for and move-on to adult services. It emphasises the importance of empowering young people to take control of their lives, and calls for an early collaboration of paediatric and adult services to improve transition. The Transition Care Pathway includes a clear template; modelled around six standards, each with key goals to guide you through the transition process.

Integrated Multi-agency Care Pathways for Children with Life-threatening and life-limiting conditions provides a framework for the development of dedicated pathways for children with palliative care needs. This care pathway identifies the many and complex needs that families have in caring for a child with life-limiting conditions. It presents a pathway to engage with the child and family's needs, which can be used to ensure that all the pieces of the jigsaw are in place, so that families can have access to the appropriate support, at the appropriate time.

The Assessment of Children with Life-limiting conditions and their families calls for a co-ordinated and multi-agency approach to the planning and delivery of care and support for all children with palliative care needs. The complex needs of children with life-limiting or life-threatening conditions can only be met by enlisting the services of a variety of different professionals and agencies. For packages of care and support to be effective, joint working and a multi-agency approach are key. Families who have children with palliative care needs often tell us the one of the most frustrating and time consuming areas for them is constantly dealing with so many professionals and individuals, many of whom fail to communicate with one another. This report provides the frameworks and tools to encourage better communication between agencies and recommends that all children should have a multi-agency assessment of needs.

ACT estimates that between 6,000 and 10,000 young people live with life-limiting or life-threatening conditions. As they approach adulthood these young people will need to make the complex and often bewildering transition from children's palliative care to adult services. Palliative Care for Young People Aged 13-24 Years is a comprehensive report on the needs of young people making the transition to adult palliative care services. It includes a detailed review of the specific needs of this age group as they make the transition to adult services and recommends the development of specific services and care for young people.