ACT | NEWS http://www.act.org.uk ACT | NEWS en-gb Copyright ACT2012. Sat, 04 Feb 2012 07:29:12 GMT 60 http://www.act.org.uk-1849 <![CDATA[Children and Young People's forum a very positive step forward, says Together for Short Lives]]> Together for Short Lives, the voice for children's palliative care across the UK, today welcomed the new forum established by the Government to develop a strategy for improving health outcomes for children and young people.

]]> Thu, 26 Jan 2012 00:00:00 GMT http://www.act.org.uk-1850 <![CDATA[Proposed Assisted Suicide (Scotland) Bill]]> Independent MSP Margo MacDonald has lodged a proposal for a Bill to enable a competent adult with a terminal illness or condition to request assistance to end their own life, and to decriminalise certain actions taken by others to provide such assistance.

]]> Thu, 26 Jan 2012 00:00:00 GMT http://www.act.org.uk-1848 <![CDATA[Fundraising and communications conference 2012 - sponsored by donorflex]]> The 2012 fundraising and communications conference supported by donorflex takes place in Birmingham on 9 & 10 February.

]]> Tue, 24 Jan 2012 00:00:00 GMT http://www.act.org.uk-1845 <![CDATA[New module - Management of the palliative care of the child with life-limiting disease]]> The University of Nottingham are offering a module in Management of the palliative care of the children with life-limiting disease. The module can be taken as a standalone module and is accessible to all healthcare and social care professionals.

]]> Fri, 20 Jan 2012 00:00:00 GMT http://www.act.org.uk-1844 <![CDATA[Diploma and Postgraduate Certificate in Childhood Bereavement]]> Help the Hospices are now recruiting for the 2012-2013 Diploma and Postgraduate Certificate in Childhood Bereavement, to start in September 2012.

]]> Fri, 20 Jan 2012 00:00:00 GMT http://www.act.org.uk-1846 <![CDATA[Contact a Family launches the first SEN National Advice Service]]> Contact a Family has launched a new service supporting families to resolve education issues for children with additional needs.

]]> Fri, 20 Jan 2012 00:00:00 GMT http://www.act.org.uk-1847 <![CDATA[Grant programmes]]> Several funding programmes have become available which may be of interest to Together for Short Lives’ members.

]]> Fri, 20 Jan 2012 00:00:00 GMT http://www.act.org.uk-1829 <![CDATA[Commission on Assisted Dying published]]> The final report of the Commission on Assisted Dying was published on 5th January.

The Commission on Assisted Dying was set up in November 2010 to consider whether the current legal and policy approach to assisted dying in England and Wales is fit for purpose.

]]> Thu, 12 Jan 2012 00:00:00 GMT http://www.act.org.uk-1832 <![CDATA[CLIC Sargent survey reveals the true cost of cancer for children and young people]]> A survey published by CLIC Sargent has revealed that parents of children with cancer are struggling to cope with the unexpected costs of travel, childcare, food and accommodation while their child has treatment.

]]> Thu, 12 Jan 2012 00:00:00 GMT http://www.act.org.uk-1831 <![CDATA[Back in stock: revised critical care leaflet for parents]]> Our leaflet, "A parent's guide: Making critical care choices for your child" has been re-branded and published by Together for Short Lives, and is now back in stock.

]]> Thu, 12 Jan 2012 00:00:00 GMT http://www.act.org.uk-1828 <![CDATA[New continence web page for children with complex health needs]]> National charity ERIC (Education and Resources for Improving Childhood Continence) is pleased to announce the launch of its new continence information and support web page for children with complex health needs (including those with life-limiting conditions).
Access the web page here 

]]> Thu, 12 Jan 2012 00:00:00 GMT http://www.act.org.uk-1820 <![CDATA[Donna's Dream House to re-open Easter 2012]]> Donna's Dream House will re-open for Easter 2012 following the arson attack on 21 December 2011.

]]> Mon, 09 Jan 2012 00:00:00 GMT http://www.act.org.uk-1801 <![CDATA[Disabled young people in residential education and care to keep DLA/PIP mobility]]> The Government has announced that disabled people living in residential care homes and colleges will continue to have their additional mobility needs met through Disability Living Allowance (DLA) and the Personal Independence Payment (PIP).

]]> Tue, 20 Dec 2011 00:00:00 GMT http://www.act.org.uk-1798 <![CDATA[Stacey Solomon for Christmas number 1]]> Stacey Solomon launches her bid for Christmas No.1 with charity single Driving Home For Christmas, as seen in the Iceland Christmas 2011 advert. Proceeds from the sale of the single will be split between Iceland’s official charity for 2011, Alzheimer’s Research UK and Stacey’s chosen charity Together For Short Lives

]]> Wed, 14 Dec 2011 00:00:00 GMT http://www.act.org.uk-1802 <![CDATA[E-petition to change bereavement leave from three days to up to 12 weeks]]> There is an e-petition on the direct gov website to increase bereavement leave from three days to 12 weeks. The e-petition was started by a parent who lost her son at 23 months old.

Visit the e-petition.

]]> Mon, 12 Dec 2011 00:00:00 GMT