Family Companion to the care pathway
We have developed this resource especially for family members of children who have been diagnosed with a health condition that means they may not live to reach adulthood
You can order a free copy which we will send to you in the post, or you can download the Companion.
The Family Companion provides you with clear, accessible information to help you understand what should happen at each stage along your child’s care journey – what you can expect from professionals, what you are entitled to and what choices you have. It mirrors the care pathway that professionals will be working through, and addresses the issues that matter to you as parents and family members, from your point of view.
Although each child’s care journey is unique, there are key stages that most children and families will experience, and each of these stages is set out and explained in a colour coded chapter, for ease of use.
As well as explaining what should happen at each of these stages, this resource makes it clear what support should be made available to you at each stage, and where that support can be found.
It includes a directory of organisations, a list of professionals who may be involved with the care of your child, and a glossary of terms.
You might also find it useful to watch the Family Companion films - stories told by parents, for parents, about the issues covered in the Family Companion booklet.
Email Susannah Woodhead to order your free copy, or call 0117 989 7820
ACT Helpline 0845 108 2201