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ACT (The Association for Children’s Pallaitive Care) was set up to help all families in the UK caring for children or young people with life-limiting or life-threatening conditions.
ACT's vision is to achieve the best quality of life and care for all children and young people with life-threatening or life-limiting conditions and their families.
ACT is a registered charity No. 1075541 and a company limited by guarantee registered in England No 3734710
ACT is committed to protecting your privacy.
Personal information
Personal information covers any data that enables us to identify you as an individual such as your name, telephone number and email address. When you supply information to us, we are legally obliged by the Data Protection Act 1998 to ensure that the information you have provided is only used for the purpose for which it was requested, and to ensure that the data is kept securely.
We will never pass your details onto a third party without gaining prior consent.
However we may need to disclose information about you, if required to do so by law.
When you contact us we may collect personal data to enable us to send you publications, membership information, newsletters etc and to keep you informed about news and issues that are relevant ACT's work.
From time to time we may also use your personal data for marketing purposes to send you information about our membership, events, research, campaigns and appeals etc.
Please read on for more detail about our privacy policy.
What information do we collect? How do we use it?
If you are taking out membership, attending events and conferences or buying our publications we need to take your name, e-mail address and delivery address. This allows us to process and fulfil your orders and to notify you of your order status. We also ask for your telephone number so that we can contact you if there is a problem with your order.
We may also ask you if you would like to share your organisation’s contact information for our helpline and information service or website contact database. If you consent to this we will share the information both online and for our information and helpline services.
Website
When you contact us via our web site, we ask for your e-mail address. We monitor customer traffic patterns and site usage to help us develop the design and layout of our website.
We may use the information we collect to notify you about important changes to the web site, as well as ACT’s services, events, publications and campaigns. If you would rather not receive this information, please send an e-mail to
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When you place orders for publications, conferences, membership or make a donation on-line via our web site, the secure server encrypts all information sent to and from your browser using the SSL standard. Furthermore, as required by the UK Data Protection Acts of 1984 and 1998, we follow strict security procedures in the storage and disclosure of information which you have given us, to prevent unauthorised access. Our security procedures mean that we may occasionally request proof of identity before we are able to disclose sensitive information to you.
Disclosure to third parties
ACT does not sell, trade or rent your personal information to others. We will never pass your details onto a third party without gaining prior consent. However we may need to disclose information about you, if required to do so by law.
Your consent
By contacting us, or using our web site, you consent to the collection and use of this information by ACT.
If we decide to change our privacy policy, we will post those changes on our website so that you are always aware of what information we collect, how we use it and under what circumstances we disclose it.
Cookies
'Cookies' are small pieces of information sent by an organisation to your computer and stored on your hard drive to allow that organisation to recognise you when you next visit. ACT may store information about you and your activity in cookies.
To find out how to delete existing cookies or prevent future cookies being stored on your hard drive, please visit www.aboutcookies.org where you can follow clear instructions on how to delete and control cookies using various internet browsers.
Access to your information
As an individual you may request to see any information that ACT holds about you. You must give written notification of the request and provide proof of identity. ACT will then respond within 40 days.
Change to this privacy policy
We may amend this policy from time to time as we develop our site. If we make any substantial changes in the way we use your personal information, we will notify you by posting a prominent announcement on our pages.
Links to other websites
The ACT website contains links to other sites, however ACT is not responsible for the content or privacy policies of any linked sites.
© Copyright ACT 2005. All rights reserved.
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