ACT - The Association for Children's Palliative Care

ACT’s 2007-8 Annual Review has now been published

Inside, you can see what our main achievements have been over the last year and how ACT is continuing its important work to improve the lives of all children with palliative care needs and their families. 

If you have any questions, would like to discuss any of the issues in the Annual Review or would like to order hard copies, please call Susannah on 0117 916 6422 or email This e-mail address is being protected from spam bots, you need JavaScript enabled to view it .

View the Annual Review here

The government is spending £30 million to improve the care of children with short lives (known as palliative care) in England.

The money will pay for children, young people and their families to get the nursing care they need at home and have short breaks in a children’s hospice.

The £30 million boost is part of an extra £340 million for disabled children’s services in the Child Health Strategy published this morning. Life-limited children will also benefit from the wider funding for disabled children.

Campaigners for life-limited children are delighted.

Lizzie Chambers, Chief Executive of ACT, said: “The government has put its money where its mouth is to help children with shortened lives. Families will now expect services to improve on the ground, starting with 24-hour nursing at home. Local health services must start planning now.”

Barbara Gelb, Chief Executive of Children’s Hospices UK, said: “This boosts efforts by children’s hospice services to get more local help for life-limited children and their families. Primary Care Trusts can’t now say they don’t have the money.”

ACT moved into new office premises on 2 February 2009, please update your contact details.
ACT's new address is: ACT, Brunswick Court, Brunswick Square, Bristol BS2 8PE
New telephone number: 0117 916 6422
New fax number: 0117 916 6430

Our Helpline, website & email remain the same:
Helpline: 0845 108 2201  W: www.act.org.uk E: This e-mail address is being protected from spam bots, you need JavaScript enabled to view it

 

ACT welcomes Scottish Delivery Plan for Children, but says children’s palliative care needs greater priority

ACT, the UK children’s palliative care charity, has welcomed the new three year National Delivery Plan for Children and Young People's Specialist Services in Scotland (launched on 20th January 2009), but says it lacks specific recommendations for all children with palliative care needs, and should be extended to cover all life-limiting or life-threatening conditions.

Take part in a short online survey and tell ACT how you rate our services.

It's your chance to help influence ACT's business review

ACT is working with JPA Consultancy, led by John Pepin, to carry out a review of all our activities and to enable us to develop a new Business Plan for the next three years.   To help us to carry out this review we would like to consult with all our members about how they rate our current services and what their ideas are for future potential services from ACT.   We value the views of all our members and would be grateful if you could complete the short online survey which can be accessed at the following link:

http://www.surveymonkey.com/s.aspx?sm=gCAusnq6Au6RvXq5tqYXNQ_3d_3d

The closing date for responses is Friday 6 February.

Your views matter to us and we would very much like to include them in our thinking as we develop a range of exciting new ventures in the years to come. Thank you.