ACT - The Association for Children's Palliative Care

ACT works hard to raise awareness of the needs and experiences of children with life limiting conditions and their families so we can lobby to improve services and ensure that children and their families receive the best quality of life and care.  We work with families, professionals and decision makers to bring about real change. 

But we need your help. If you or a family member has a child or children with a life-limiting or life-threatening condition and would like to share your own personal story please contact ACT. Whatever your experience we are very keen to hear from you. Everyone has a unique and powerful story to tell and by sharing your personal experience you are not only helping to advance others’ knowledge of what it is like to have a child with a life-limiting condition, you can also help to raise awareness of children’s palliative care.

One of the ways that we can really change hearts and minds is by working proactively and positively with the media – a powerful mechanism for conveying the realities of living with a life-limiting or threatening condition, or caring for a child or young person. 

Having a stronger media presence will help to improve our lobbying and awareness raising activities, as well as accurately communicating your experiences, needs and concerns.

If you feel able to help in anyway, please do get in touch.  There are lots of ways that you can get involved – perhaps providing a story for our website, or our family newsletter – “ACT 4 families”, or being interviewed for a feature in a magazine, news story or radio broadcast. 

If you do decide that you want to get involved please do get in touch by calling Myra at ACT on 0117 922 1556 or This e-mail address is being protected from spam bots, you need JavaScript enabled to view it directly.

Please be assured we will never print your story without your permission or give out your details to the media without checking with you first.