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Scotland’s first dedicated Nurse Consultant posts for children’s and young people’s palliative care were formally announced at the ACT and SCYPPCN (Scottish Children’s and Young People’s Palliative Care Network) Conference in Edinburgh last week (3 June 2008).
Speaking at the Conference three of the four new Nurse Consultant post holders unveiled their new vision for children’s and young people’s palliative care, and said they wanted to ensure that children and their families are at the heart of policy and practice developments across Scotland.
These four new Nurse Consultant posts have been funded for two years by the Scottish Government Health Directorates and will play a major role in helping to raise awareness of the need for dedicated children’s palliative care services in Scotland. One of the first challenges will be helping to ‘make the case’ for this sector by more accurately mapping the extent and need for these services across Scotland.
All four Nurse Consultants have now been recruited and appointed and it’s anticipated that they will all start in post by late August 2008. The posts will work across four main NHS regions, and will have both regional and national responsibilities: Greater Glasgow and Clyde (for West Scotland); Lothian (for East of Scotland); NHS Tayside (for North of Scotland); and NHS Grampian (for North of Scotland). The Nurse Consultant appointments have been made to:
Katie Rigg (to jointly cover the North of Scotland – based in Tayside)
Jane Scotland (to cover the East of Scotland – based in Lothian)
Francis Edwards (to jointly cover the North of Scotland – based in Grampian)
Karen Sinclair (to cover the West of Scotland – based in Greater Glasgow and Clyde)
Introducing the new Nurse Consultants, Rory Farrelly, National Advisor (Scotland) to the Chief Nursing Officer for Children’s and Young People’s Nursing said:
“This is an exciting time for our work in delivering services and care to life-limited and life-threatened children and young people, and their families. We now have four dedicated Nurse Consultant posts who will play a key role in delivering change across Scotland. They will be charged with helping to raise awareness of the need for dedicated children’s palliative care services, driving good practice, encouraging a multi-agency approach and helping to develop a sustainable nursing workforce for the sector.”
Once in post the four consultants will take the lead on supporting nurses and other health providers to realise their full potential and placing children and young people and their families at the centre of care planning. They will be expected to develop a responsive children’s palliative care service by working across five key functions: Expert Advice; Strategic Planning and Policy Development; Practice Development, Education and Training; Professional Leadership; and Research and Development.
As part of the their Expert Practice work the four post holders will each have a key area of responsibility in rolling out one of the following four pathways for children and young people with life-limiting conditions. These are:
• An End of Life Pathway for children and young people and their families.
• A Transitional Care Pathway for young people.
• Pain management/Symptom control for children and young people.
• Development of care pathways for children and young people with complex palliative care needs.
Francis Edwards, one of the newly appointed Nurse Consultants for Children’s and Young People’s Palliative Care, and ACT Trustee said:
“We are all looking forward to being part of this very exciting time in Scotland, and know that we will be working alongside an excellent workforce, dedicated to supporting children, young people and families. We see ourselves as another resource - to help increase capacity, identify and fill the gaps and support developments. Our vision is to assist and support the complete integration of children’s palliative care across Scotland.”
“The key to doing this will be developing national care standards which enable all children and young people and their families to make real choices. This means enabling them to have a choice of their place of care, choice of their place of death; and giving families and carers a choice of bereavement care and support.”
Commenting on the appointment of the Four Nurse Consultants, Lizzie Chambers, Chief Executive of ACT said: “This is a major triumph for Children’s Palliative Care and these excellent appointments will make a real difference to children, young people and their families. ACT will be delighted to work closely with these expert Nurse Consultants over the next two years, and we hope these vital posts will be extended long into the future.
ACT has long campaigned for a care pathway approach to our work and rolling out this framework across Scotland will help all to better plan, commission and deliver services to those children and families who need them.”
ENDS
For more information about this press release contact:
Myra Johnson, Communications and PR Manager at ACT
Tel: 0117 922 1556 Mobile: 07890842209 Email:
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Notes to Editors:
1. About the Nurse Consultant – Children’s and Young People with Palliative Care Needs
The four new Nurse Consultants are due in post by late August 2008. The posts will work across four regions and have both regional and national responsibilities, based in the following NHS regions: Greater Glasgow and Clyde (for West Scotland); Lothian (for East of Scotland); NHS Tayside for (South of Scotland); and NHS Grampian (for North of Scotland). The Nurse Consultants are:
Katie Rigg (to jointly cover the North of Scotland – based in Tayside)
Jane Scotland (to cover the East of Scotland – based in Lothian)
Francis Edwards (to jointly cover the North of Scotland – based in Grampian)
Karen Sinclair (to cover the West of Scotland – based in Greater Glasgow and Clyde)
Please see the following background biography information about each Nurse Consultant:
Katie Rigg will be hosted in NHS TAYSIDE Health Board for North of Scotland
Qualifications: -
RGN/RSCN
Diploma in Nursing
Community Nursing & Palliative Care Nursing – BSc Honours
Advanced Clinical Masters Programme Finishes September 2009.
Previous post at Team Leader Children’s Community Nurse – Diana Team working in the development of children’s community palliative care service in North Cumbria.
• Experience of networking and liaising at a local and national level
• Experience of sitting on national Strategy
• Sits on national group for developing Strategy for Palliative Care
• Involved in development of national guidelines for Palliative Care
• Clinical lead to nursing and multi disciplinary and multi agency services
• Clinical and management supervision of team
• Involved in training and education
Ms Jane Scotland will be hosted in NHS Lothian Board covering East of Scotland
Qualifications: -
RGN/RSCN
Health Service Management - BSc Honours
Risk management Certificate for Managers
Diploma Paediatric Palliative Care
Degree Modules in Child Protection
Current Post: Care Co-ordinator Facilitator with Edinburgh CHP providing effective multi development, implementation and maintenance of a partnership model for the provision of co-ordinated services with complex needs across the city of Edinburgh.
• Previous experience included working as Nurse Advisor for Child Protection, Lead Nurse for Services for C&YP, Diana Community Children’s Services which included Palliative care.
• Influencing and developing local and national policy and practice
• Participating in the education and training and supervision of staff at all levels
Francis Edwards will be hosted in NHS Grampian Health Board for North of Scotland
Qualifications:-
RGN/RSCN
Paediatric Cancer Nursing – BSc Honours
ENB 934 and 240.
• Experienced children's nurse with particular expertise and skills in children's palliative care.
• During this last year he has been recognized at a national and local level for the community based service and received awards in the National Well Child Awards and locally for the service
• Francis is currently working in the community in Brighton as a CLIC Sargent Clinical Nurse Specialist in paediatric oncology and palliative care. He created this exciting post eight years ago and continues to develop this community based work in Brighton. As a result of his work, all oncology children under the care of the Children’s hospital get to die in their preferred place of care and this experience is shared with a wider range of children through our their local palliative care group. Over the last two years he has taken the lead on the development of a care pathway for all dying children in Sussex, and working closely with partnership organisations across the statutory & voluntary sectors working in Sussex to develop a clear pathway for all dying children.
• He appreciates and is committed to the importance of holistic and family-cantered care, and sees ‘soul work’ as a key element of his care to the children and families he works with. His dissertation at The Institute of Cancer Research in 1976 was on The Nature of Soul Pain in Children with Cancer’. He maintains that Soul Pain has very little to do with God, but what is going on at a deeper level for children and families whose child or children are dying.
Karen Sinclair will be hosted in NHS Greater Glasgow and Clyde Health Board for West of Scotland
Qualifications:
RGN,
RSCN,
Diploma in Paediatric Critical Care,
Registered Nurse- Canada,
Specialist Practitioner Qualification in District Nursing / Community Children’s Nursing
BSc Health Studies
Presently studying for a Post Graduate Certificate in Learning & Teaching in Higher Education
Current post:
Currently team leader for the Community Children’s Nursing Service in Renfrewshire (Greater Glasgow & Clyde Health Board). We provide specialised nursing care in the community to children and young people with life limiting, life threatening and complex needs. I set up this service twelve years ago and have been responsible for its development into a team of community children’s nurses.
I have experience of multi disciplinary and multi agency working and have been involved in redesigning and improving local services for children.
I am involved in education, training and supervision of staff in the practice setting.
Previous experience:
From 2003- 2006, I worked as a Lecturer/ Practitioner at Glasgow Caledonian University where I was option leader for the Community Children’s Nursing pathway of the specialist practitioner community nursing programme.
I have worked as a research nurse and prior to that was a paediatric intensive care nurse for six years.
2. About ACT
ACT is the only organisation working across the UK to achieve a better quality of life and care for every life-limited or life-threatened child or young person and their family.
ACT supports a children’s palliative care professional and family membership across the UK and provides a national helpline and information service. ACT produces a range of publications and resources, including care pathways for life-limited or life-threatened children and young people, and publishes the International Journal for Children’s Palliative Care.
ACT takes a lead on lobbying and campaigning for sustainable children’s palliative care services and plays a key role in ensuring that the needs of all affected children and their families are heard. ACT has a UK website www.act.org.uk, and manages the International Children’s Palliative Care Network website www.icpcn.org.uk
ACT is a registered charity and registered company. Registered Charity No: 1075541 Company Registration No: 3734710 England.
ACT - The Association for Children’s Palliative Care
Orchard House, Orchard Lane, Bristol BS1 5DT
T. 0117 922 1556
F. 0117 930 4707
E.
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www.act.org.uk
3. About the Scottish Children’s and Young People’s Palliative Care Network (SCYPPCN)
The Scottish Children & Young People’s Palliative Care Network (SCYPPCN) is a national multi-agency group established to work together to ensure that palliative care for children and young people and their families is delivered in a seamless and integrated way across Scotland.
The Network is open to anyone in Scotland who is working with children and young people with palliative care needs such as Children Community Nurses, Commissioners of Children’s Services, Education workers, Paediatric Consultants with special interest in palliative care, those working with children and young people with complex needs or disabilities.
The group meets quarterly at locations throughout the country, the next meetings are going to be held on:
4th September 2008 in Dundee
2nd December 2008 in Glasgow
5th February 2009 in Edinburgh
For more information about the Network email Katrina McNamara-Goodger at ACT:
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