ACT is the only organisation working across the UK to achieve a better quality of life and care for every life-limited child and their family.

ACT Chief Executive:
Lizzie Chambers

President:
Professor Sir A W Craft

Hon Vice Presidents:
Sister Frances Dominica and Dr Ann Goldman

Ambassador:
Rosa Monckton

Patrons:
Angela Baum, Adam Hart-Davis


ACT TRUSTEES

Chair
Heather Wood – Chief Executive, Rainbow Trust

Vice-Chair
Jean Simons – Support and Education Manager, Foundation for the Study of Infant Deaths and Chair of the Child Death Helpline

Trustees
Dr Finella Craig – Children’s Palliative Care Consultant, Great Ormond Street Hospital

Sally Flatteau Taylor – Director, The Maypole Project

Brother Francis, Clinical Nurse Specialist, Brighton

Anna Gill – Parent Representative

Ted Gladdish, Chief Executive, Demelza House Children’s Hospice

Dr Richard Hain – Consultant in Paediatric Palliative Medicine, Department of Child Health, Cardiff University

Dr Anne Hunt – Senior Research Fellow in Children’s Palliative Care, University of Central Lancashire

Dr Satbir Jassal – Medical Director, Rainbows Children’s Hospice

Sally Jenkinson – Director of Children’s Services, The Children’s Trust, Tadworth

Sharon McCloskey – Area Bereavement Co-ordinator, Northern Ireland Children’s Hospice

Rosie Midson – End of Life Team Manager, Great Ormond Street Hospital

Dr Chris Newman – Community Paediatrician (retired)

John Overton – Executive Chairman of the Quercus Foundation, Acorns Children’s Hospice

Robert Pitts – Director, Relate (Taunton)

Chris Roys – Chief Executive, Jessie May Trust

Julia Shirtliffe – Community Palliative Care Manager, Quiddenham Children’s Hospice

Dr Angela Thompson -  Community Paediatrician, Coventry and Warwickshire

Dr David Vickers – Consultant Paediatrician, South Cambridgeshire PCT

David Widdas – Consultant Nurse for Children with Complex Healthcare Needs, Coventry and Warwickshire

Lana Clacher – Deputy Head of Care, Rachel House, CHAS


ACT Staff

Chief Executive: Lizzie Chambers

Project Manager, National Mapping Initiative: Sonja Ezergailis:

Project Development Manager: Debbie Hye

Head of Policy and Practice: Katrina McNamara-Goodger

Finance and Admin Officer: Emma Langley

Communications and Admin Officer: Sally Wain-Heapy

Communications and PR Manager: Myra Johnson