In 1992 when ACT first began life as a national charity, very little was understood about the needs of families caring at home for children with life-threatening or life-limiting conditions, of the numbers involved or of the struggle they had to make themselves heard. ACT's advocacy work over the past 12 years has made a significant impact on the understanding and acknowledgement of needs, and on the improvement and development of care.

 
1993

Published the ACT Charter for Children with Life-threatening or Terminal Conditions and their Families, which was endorsed by the Secretary of State for Health

 
1995 

Published a booklet Children's Hospices, A Place for Living and details of existing and proposed children's hospices in the UK

 
1997

Published jointly with the RCPCH, A Guide to the Development of Children's Palliative Care Services

 
1998

Advised the Chancellor of the Exchequer's Memorial Committee on the proposal to set up nursing teams in memory of Diana, Princess of Wales and was involved in the selection process of the teams

 
2001

Published a report on the needs of life-limited adolescents Palliative Care for Young People, 13-24

 
2001

Published the first edition of a research journal PaedPalLit

 
2002

Published a Guide to the Assessment of Children with Life-limiting Conditions

 
2003   

Published a research report Voices for Change, launched at the House of Commons

 
2003

Launched a world-wide email discussion group PaedPalCare

 
2003 

Published a second edition of Guide to the Development of Children's Palliative Care Service

 
2004

Published an Information Pack for Families of Children with Life-limiting Conditions, containing an update of the ACT Charter.

 
2004

Published a Framework for the Development of Integrated Multi-Agency Care Pathways for Children with Life-limiting Conditions, which was endorsed by the Parliamentary Under-secretary of State for Health