In 1992 when ACT first began life as a national charity, very little was understood about the needs of families caring at home for children with life-threatening or life-limiting conditions, of the numbers involved or of the struggle they had to make themselves heard. ACT's advocacy work over the past 12 years has made a significant impact on the understanding and acknowledgement of needs, and on the improvement and development of care.
1993
Published the ACT Charter for Children with Life-threatening or Terminal Conditions and their Families, which was endorsed by the Secretary of State for Health
1995
Published a booklet Children's Hospices, A Place for Living and details of existing and proposed children's hospices in the UK
1997
Published jointly with the RCPCH, A Guide to the Development of Children's Palliative Care Services
1998
Advised the Chancellor of the Exchequer's Memorial Committee on the proposal to set up nursing teams in memory of Diana, Princess of Wales and was involved in the selection process of the teams
2001
Published a report on the needs of life-limited adolescents Palliative Care for Young People, 13-24
2001
Published the first edition of a research journal PaedPalLit
2002
Published a Guide to the Assessment of Children with Life-limiting Conditions
2003
Published a research report Voices for Change, launched at the House of Commons
2003
Launched a world-wide email discussion group PaedPalCare
2003
Published a second edition of Guide to the Development of Children's Palliative Care Service
2004
Published an Information Pack for Families of Children with Life-limiting Conditions, containing an update of the ACT Charter.
2004
Published a Framework for the Development of Integrated Multi-Agency Care Pathways for Children with Life-limiting Conditions, which was endorsed by the Parliamentary Under-secretary of State for Health
